Microcephaly

Small Is Beautiful: Microcephaly Awareness Day 2015

On Microcephaly Awareness Day we wear Yellow!

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What is Microcephaly?

Microcephaly is a medical condition in which the circumference of the head is smaller than normal because the brain has not developed properly or has stopped growing.  Microcephaly can be present at birth or it may develop in the first few years of life.  It is most often caused by genetic abnormalities that interfere with the growth of the cerebral cortex during the early months of fetal development. Depending on the severity of the accompanying syndrome, children with microcephaly may have impaired cognitive development, delayed motor functions and speech, facial distortions, dwarfism or short stature, hyperactivity, seizures, difficulties with coordination and balance, and other brain or neurological abnormalities.  Some children with microcephaly will have normal intelligence and a head that will grow bigger, but they will track below the normal growth curves for head circumference (National Institute of Neurological Disorders and Stroke, 2015).

Microcephaly affects more than 25,000 infants annually in the U.S, which makes it more common than Autism  (Microcephaly.org).

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To read more about what’s going on with Gi check out All About Gi

Today is to celebrate the little warriors who fight unseen battles, who are often misunderstood and mis/under represented. Gi is my courage and I am her voice. The battles are fought as a family and days like this bring hope that maybe things can get easier, if not for me, then for others that may follow.

Not only do we celebrate them, but in doing so we bring awareness. I hope to bring community awareness and shine a light on special need families, along with raising money for research to prevent and/or treat microcephaly and all the terrible things that come with it.

I am so truly, madly, deeply in love with my baby girl! The journey we have been on has been incredibly difficult and inspiring! Our family may look different than the “norm” or the dream picture-perfect, but that’s ok.” Normal” is boring anyways!

 Every good gift and every perfect gift is from above, coming down from the Father of lights with whom there is no variation or shadow due to change. James 1:17

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